An Inflammatory Breast Cancer Milestone in Coding, But Limited Impact on Diagnosis and Treatment

An Inflammatory Breast Cancer Milestone in Coding, But Limited Impact on Diagnosis and Treatment

By Rachel Ford, an Inflammatory Breast Cancer Survivor & Advocate Introduction Inflammatory Breast Cancer (IBC) is a rare and aggressive subtype, comprising only about 1–5% of all breast cancers in the U.S.. Yet, it claims a disproportionately high share of lives....
Scars are Souvenirs

Scars are Souvenirs

I felt nostalgic last week, so I turned on some music from my high school days. Sometimes I forget about how great the music was when I was growing up. How great music is in general. Song lyrics hit me differently now that I am older and with all that life has thrown...
Life After Death

Life After Death

My wife, Amanda, was diagnosed with inflammatory breast cancer (“IBC”) in February, 2022. After three years of cycling through multiple lines of treatment, including clinical trials, Amanda died on February 10, 2025. This was, by a significant margin, the worst day of...
Alaska Journey

Alaska Journey

Almost immediately after I was diagnosed I wanted to go. I didn’t really care where. I wasn’t seeking a destination but rather movement, forward movement. This desire was not at all about running away, I knew I could not run away from this disease and as...

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